October 13, 2015

A change in plans and new path to walk!


Where to begin... Here we go!

We just couldn't await the excitement of finding out what this precious bundle was going to be so we went for an elective ultrasound on August 6th to only find out we would be adding a lot of pink and bows to our home come January!!

On August 27th we went in for our 20 week ultrasound with our doctor. The following day we got our follow up call that everything looked good and she was healthy, but she was just to active (which was so true as it took 1.5 hours for that ultrasound!) that they did not get good shots of her spine and heart, being important parts he requested we go in for a follow up. Since there was nothing wrong he said no rush we can schedule it at our next apt in 4 weeks.

September 28th we go in for that updated scan. Bonus for us was we were now getting to see our sweet little girl for a third time! Our doctor was out of town that week so we would have to wait to hear results till he came back.

October 5th our world turned upside down as we were told half of her heart was smaller than the other and he was not sure what it was, nor what it meant, but that we would now need to go see a specialist. My heart broke at the sound of something being wrong with this bundle of joy I feel kick and move inside me daily, but the only thing we were able to do was pray, pray, and pray some more.

Fast forward to our apt exactly a week later (October 12th) we had an Echocardiograph done, where our new high risk doctor explained what we were dealing with. Which with some help to google I had read about the week we waited to see him so we had a little bit of an idea of what we were going to be getting into.

Miss P (as we call her until her name is relieved with her birth) or sissy as Wyatt calls her has Hypoplastic Left Heart Syndrome (HLHS) as of today we are waiting for our apt with a pediatric cardiologist to find out the extent and exactly what all comes with her specific case so I don't want to go into to much detail, but that give you all a general idea.They have no way of giving us a cause as there isn't one being that no one in our family has any type of this it just happened by chance. HLHS is more common in boys, as only 1/3 of the cases are found in girls.

 Here is a link that is great with information and helps break it down, this was my go to site before we saw our high risk doctor and while there he recommended we read it so I knew I had found the right place for information! www.cincinnatichildrens.org/health/h/hlhs/

As of today we don't know exactly what our future will hold, and we don't know exactly what our road will be paved with when she arrives in a few short months, but what we do know is god is already there and waiting knowing exactly what will happen and we have faith in that!

Many have asked what they can do and honestly there is nothing right now except pray! We believe god blessed us with this little girl for a reason and as hard as this will be and as confusing as it may be right now we are ready for him to lead us down this road. So as we travel it please keep Miss P mostly, but also the three of us in your prayers.
Verse for thought on our final paragraph Psalms 46:5 "If God is within her she will not fail"
I truly believe she is an amazing fighter and god will pull her and all of this through this battle and we will have an amazing finish line!

Here is where you can keep updated on all her information as we walk this new journey, we will have a Facebook page closer to her due date to follow along as well with updates and photos!

Thank you all for the support and kind words we have received so far.

If you are reading this down the road and just getting on your journey with HLHS you will be in our prayers and PLEASE feel free to contact us with any question or just with a name to put with that prayer as we have been in your shoes and know exactly how it feels right now! Stay Strong, Have Faith, and God Bless! :)

Until our next update <3 The Phelps!

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