Day 3!!

I'm Day 3 Update! 

Paisley had a great night and her stats stayed good. Her morning X-Ray showed secretions on her right lung so they were thumping that today to help break them up and we will know tomorrow morning how that is doing! 

She had her second Echo today and it sadly came back the same as her first. The ventilator is helping her from working so hard on her own but it didn't help make a change in her Tricuspid Valve (the leaky valve that is not sealing off and causing a back flow.) 

With that it now means she is NOT a candidate for the originally planned Norwood surgery that we were hoping would happen the beginning of next week. That now means she will be having a Hybrid operation instead. The hybrid (Photo Below) is a non reconstructive surgery that will help her heart to function on its own but without being so invasive as the Norwood. Her body just is not strong enough to handle the Norwood right now so they want to give her time so grow and get stronger before they get to that bridge. The Norwood will now be moved to later and be combined with the second originally planned Glenn surgery. 

Her Hyrbrid will not be until the middle of next week sometime as the surgeon that handles those is out of town at the beginning. 

Good news that came along with today!! 

Mommy got to enjoy 2.5 hours of cuddle time (with a nap in there for a very tired momma) and daddy got a little over an hour later in the evening! Those are much needed times and truly treasured! 

Another-

Her little eye's are swollen and it is hard for her to open them (we were actually told she probably wont be able to open them till after surgery when the swelling goes down.) So to tell when she is awake we just watch for facial movements, eye lids moving and such since we cant hear her cry either. Well tonight about 20 minutes after being told she cant open them, while rubbing her feet and talking to her she woke up and was raising her eye brows, she then got one eye lid open and was following me! That was truly amazing. Tonight after the shift change we were talking to her again and she was upset with them doing their workup she go BOTH eye's open for about a minute. That was so nice to see as she hasn't had them open since delivery. She truly is a little fighter and sets her own path! 

So if we can get prayers as plans are made for her surgery next week, and guidance for them. Prayers for Wyatt as he is having a hard time understanding and seeing his sissy this way when all he wants to do is "cuddle her" and continued prayers for all the amazing doctors, nurses and everyone on her team that is caring for our precious girl. 

Thank you all again for your support, and prayers! 

#PrayersforPaisleyAnn